Putting Our Heads Together
Posted in Legislation, News, Stories on Mar 29th, 2009
The nuclear bombs Charlie Wolf built helped win the Cold War. But his toughest battles came afterward, when he applied to a troubled federal compensation program intended for those whose top-secret work made them sick.
Posted in Action Alerts, Legislation on Mar 16th, 2009
On January 22, 2009 Rep. Barbara Lee (D-CA) introduced HR 653 (formerly HR 7153), The National Childhood Brain Tumor Prevention Network Act of 2009, to the House of Representatives.
Also on January 22, Senators Charles Schumer (D-NY) and David Vitter (R-LA) introduced S.305, the companion bill to HR 653, to the U.S. Senate.
Posted in Legislation, News on Jan 22nd, 2009
With 2,200 Children Diagnosed with Malignant Brain Tumors Each Year, Critical Funding, Research, and Coordination are Desperately Needed
Legislation will Create a New Pediatric Brain Cancer Research Network within the National Cancer Institute to Study and Prevent this Tragic Disease
Posted in Legislation, News on Mar 13th, 2008
Steffanie Collings, namesake of legislation to require insurance coverage for routine health care costs for patients who undergo clinical trials, died today, a day after the bill passed the state Senate.
Posted in Legislation, News on Feb 21st, 2008
A Senate committee passed “Steffanie’s Law” today to require insurance companies to cover medical costs such as lab tests and doctor’s visits associated with clinical trials that test new medical treatments for such things as cancer.
Posted in Legislation, News on Feb 5th, 2008
I know from personal experience how difficult Social Security’s disability process can be.
Posted in Legislation, News on Feb 1st, 2008
Q: What led you to found the Brain Tumor Foundation, when did it begin operating and how do you fund it?
A: I started the foundation after my youngest son, Cade, died of a brain tumor in 2000. He was almost 2 years old.
Posted in Legislation, News on Jan 23rd, 2008
When doctors at Children’s Hospital in Oklahoma City told Steffanie Collings’ parents that her last, best hope to survive the tumor that invaded her brain would be a stem cell transplant, they readily agreed to the procedure.
Posted in Legislation, News on Nov 13th, 2007
As representatives and senators debate, discuss and bargain about the Conquer Childhood Cancer Act, I’d like to step up as the parent of child with cancer — and welcome you to our world. Maybe, I’ll give you pause as you head into your next roundtable discussion.
